Navigating Emotional Struggles Gracefully: Staying Grounded in the Woods

This line 👇🏼 from a song deserves to stand alone.

The world is hard on beautiful things.

-“Beautiful Things” by Megan Moroney

When I hear this line, I think about the people I know who have been hurt by the world. It takes not only our emotions for a nosedive.

But also our peace.

Our patience.

Our nervous systems.

Our hope.

Our ability to assume the best instead of the worst.

You can’t stop the waves, but you can learn to surf.

–Jon Kabat-Zinn

It feels like we’re all moving through life with our shoulders somewhere around our ears. Chronic illness, fear of aging, financial stress, uncertainty, bad news on an endless loop. Some people are simply trying to get through Tuesday with enough energy to make supper 🙋‍♀️ .

It doesn’t take much to tip us over.🐄

A few days ago, mine came in the form of a boat launch.

Anyone who’s spent time around a busy boat launch knows it’s a fascinating social experiment.

An overabundance of strong opinions and egos exists.

There are no rules. Written or unwritten.

Just enough ambiguity transpires, that everyone believes they’re right.

I’ve been launching boats for about fifteen years. I know the rhythm. I stay out of people’s way, wait until my truck is actually in the water before moving, and do my best to keep things safe and efficient.

Apparently one gentleman decided I’d “cut the line.”

Boat launches really do produce fascinating specimens of humanity.

I’ve learned that confidence can be surprisingly unsettling to some people. Especially when it arrives in the form of a woman who knows how to load the boat on the trailer without making a production of it.

It’s funny how a little perceived competition can bring out our inner third-grader.

The equipment may have six-figure price tags, but occasionally the conflict resolution skills still come from recess days gone by.

When I calmly explained why I was waiting where I was. And how the process normally works. He didn’t want an explanation.

He began clapping sarcastically.

The world doesn’t just wear us down through tragedy. Sometimes it does it one sarcastic clap at a time.

–Claire played by Molly Gordon in “The Bear“

As he mocked me it became clear he just wanted an audience.

He got one when a couple of other boaters joined in the jeering.

I wish I could tell you I laughed it off.

Instead, my nervous system hit the panic button.

My cortisol rose faster than I can launch my boat. (I’m a pro at both.)

My heart raced. My hands shook.

My cortisol packed a lunch and settled in for two to three business days.

Several days later, I could still feel my body replaying the scene.

I think what bothers me most, at this point, is somewhere out there is a misguided soul telling the story of the woman who “cut the line” at the dock.

How people treat you is their karma, how you react is yours.

–Wayne Dyer

Maybe you’ve had moments like that.

Perhaps someone says something. Misunderstands you. Treats you unfairly.

And your body reacts long after the event is over.

For those of us living with chronic illness or chronic stress, these moments don’t simply sting.

They cost us.

That’s why a line from a recent episode of the Untangle podcast kept coming back to me.

In “Quiet Strength and Equanimity: Finding Calm in a Chaotic World,” Margaret Cullen explores how we stay peaceful in a world that often seems determined to take our peace away.

One story she shares has stayed with me.

A man is rowing through thick fog when he notices another boat heading directly toward him.

The other boat is bigger. He should have the right of way.

He shouts. No response.

He waves. Nothing.

The other boat keeps coming.

His frustration turns to anger.

“Move!”

Just before the collision, he swerves.

As the fog clears, he realizes…

The boat is empty. No one was steering.

Instantly, his anger disappears.

Who was he angry with?

No one.

Since first hearing that story, I’ve asked myself this question.

Is the boat empty?

Not literally.

But is this personal?

Or am I assigning intention where there may be none?

Maybe they’re exhausted. Grieving. Terrified.

Maybe they simply don’t know any better.

Or maybe they’re carrying hurts I can’t see.

None of those possibilities excuse poor behaviour.

But they completely change where I direct my emotional energy.

Sometimes, seeing clearly dissolves the anger.

Pronoia

The opposite of paranoia. it is the belief that people or the world are secretly working in your favour. That events, people and circumstaces are somehow conspiring to help you.

That’s different from stuffing feelings down or pretending they don’t exist.

You can’t bypass emotions.

You can’t slap a positive quote over a nervous system that’s sounding the alarm.

But sometimes the alarm quiets on its own because you suddenly realize…

There isn’t actually an enemy here.

Just another imperfect human.

When the boat is empty, compassion often becomes easier than combat.

Margaret Cullen also offers another perspective I love.

Ask yourself:

How will this feel next week? Next month? Next year?

It’s amazing how many mountains quietly shrink into molehills when viewed from a little distance.

Then she takes it even further.

She talks about astronauts experiencing the Overview Effect. Seeing Earth from space and returning with an entirely different understanding of what matters.

Imagine grandmother’s wisdom. Now multiply it by the view from orbit.

Our arguments. Our bruised egos. Our need to be right.

They suddenly become very small compared with this astonishing little blue planet we’re all sharing.

That doesn’t make our feelings unimportant.

It simply gives them context.

Another surprisingly effective tool?

Humour. Humour interrupts the story we’re telling ourselves.

We’ve all done it.

We become convinced we’ve been wronged in the most spectacular fashion imaginable.

Our spouse is over there admiring a duck while we have mentally drafted the closing argument for a trial that nobody else even knows is happening.

Sometimes all it takes is one ridiculous observation from them to break the spell.

I wish I could say I found “the funny” at the boat launch.

I wasn’t there yet.

Maybe next time.

One tool that has helped me far more consistently is asking:

Am I living this moment according to my values?

Not theirs. Mine.

I can’t control sarcasm.

I can’t control mockery.

I can’t control who decides to clap sarcastically at a stranger.

But I can decide whether I respond with kindness.

Integrity. Respect. Compassion.

Those are mine to keep.

The more our daily lives align with our values, the steadier we become.

Peace stops being something we chase and starts becoming somewhere we live.

The idea of felt safety is something we’ll explore more in the next post.

Felt safety isn’t the absence of fear.

It isn’t the absence of challenge.

It’s your nervous system recognizing that you have enough capacity to face what’s in front of you.

That you are enough.

That you can survive this moment.

Forest therapy has become one of the places where I practice exactly that.

The forest rarely requires me to react in the moment.

It stretches time. It expands perspective.

It reminds me that not everything deserves my nervous system’s full emergency response.

When someone steals my peace…

I take it to the woods.

There, I remember that I’m part of something much older than a rude exchange at a boat launch.

Much bigger than today’s frustration.

And much more beautiful than the story my anxious brain was writing five minutes earlier.

Eventually I remember that peace is a terrible thing to hand over to someone you’ve never met.

A Forest Therapy Invitation

If you’re new here and want to learn more about forest therapy and how it works, check out this page. The Gist

The next time something rattles you, resist the urge to replay it over and over.

Instead, head outside.

Find one tree that catches your attention.

Stand with it for five slow breaths.

Now ask yourself:

  • Is the boat empty?
  • Will this matter next year?
  • What would this look like from space?
  • What response best reflects my values?
  • How can I become the tenderness this moment needs?

Don’t force an answer.

Just notice what changes.

Sometimes the forest doesn’t solve the problem.

It simply reminds us that we are far bigger than it.

Forest therapy doesn’t help me escape the world. It helps me return to it without becoming like it.

Margaret Cullen ends her book Quiet Strength with words I borrow:

May each of us find a way to bring balance and tenderness to this floating world, moment by moment, drop by drop.

I can’t think of a better response to a world that is hard on beautiful things.

Let’s become one of the beautiful things that refuses to grow hard.

The world may be hard on beautiful things. That doesn’t mean beautiful things have to become hard.

Instead…

Let’s become the tenderness.

In a gentle way you can shake the world.

–Mahatma Gandhi

Hormone Disruptors: Hidden Toxins That May Be Affecting Your Health

Adopt the pace of nature: her secret is patience.

-Ralph Waldo Emerson

When you’re living with chronic pain, migraines, fatigue, hormonal changes, or an autoimmune condition, every ounce of energy matters.

So it can be frustrating to discover that many of the products we use every day may be working against us.

The reality is that we live in a world filled with chemicals, pollutants, and environmental stressors. While our bodies are remarkably resilient, they weren’t exactly designed for a daily cocktail of synthetic fragrances, plastics, pesticides, and mystery ingredients with names that sound like they belong in a chemistry textbook.

I recognize that in speaking on this topic, I now resemble a kooky, woo woo spokeswoman for all things unconventional. But stick with me.

If you’ve ever looked at an ingredient label and thought, “I have no idea what any of these words mean, but I’m about to put them directly on my skin,” you’re not alone.

I’ve reached the age where reading labels is apparently one of my hobbies.

Welcome to the wacky world of hormone disruptors.

What Are Hormone Disruptors?

Hormone disruptors, also called endocrine disruptors, are chemicals that interfere with your body’s endocrine system, the network responsible for producing, transporting, and regulating hormones.

Think of hormones as your body’s communication system. They send messages that help regulate everything from sleep and metabolism to mood, reproduction, energy, and immune function.

Hormone disruptors can interfere with those messages by:

  • Mimicking natural hormones
  • Blocking hormone receptors
  • Altering hormone production
  • Affecting how hormones are transported or eliminated

In other words, they’re the equivalent of someone repeatedly hitting “reply all” on emails that were never meant for them.

My hormones wake up everyday and choose unpredictability. They have the organizational structure of a flock of startled geese.

Why Does This Matter?

For years, many people with chronic conditions have been told that their bloodwork is normal, their tests look fine, and everything appears to be functioning as expected.

Meanwhile, they’re exhausted.

They’re in pain.

They’re dealing with migraines, inflammation, brain fog, sleep disturbances, mood changes, or symptoms that don’t fit neatly into a box.

Hormone disruptors aren’t necessarily the cause of these conditions.

But if your body is already managing chronic inflammation, pain, migraines, fatigue, hormonal changes, or autoimmune symptoms, reducing unnecessary stressors may give your system one less thing to deal with.

It’s not a cure.

But every little bit of support matters.

Symptoms That May Be Linked to Hormone Disruption

Hormone disruption can show up in many different ways
Some common symptoms include:

  • Fatigue
  • Brain fog
  • Sleep disturbances
  • Mood changes
  • Anxiety
  • Weight gain or difficulty losing weight
  • Headaches and migraines
  • Skin issues
  • Fertility challenges
  • Irregular menstrual cycles
  • Low libido
  • Increased inflammation

The challenge is that many of these symptoms overlap with chronic illnesses, making hormone disruption difficult to identify.

Which is somewhat rude, if you ask me.

My Experience

When I first started learning about hormone disruptors, I had two reactions.

First:

“Well, that’s concerning.”

Second:

“There is absolutely no way I can afford to replace everything I own, let alone find the time and energy to make everything!” (mentally checks out of this topic)

Thankfully, I’ve since learned that reducing exposure isn’t about perfection.

It’s about making practical choices that support a body that’s already working hard.

Because if the wellness industry had its way, I’d be replacing every item I own by Tuesday. And while I appreciate the enthusiasm, my budget and my sanity have other things to do.

Where Are Hormone Disruptors Hiding?

Unfortunately, they’re not hiding very hard.

Personal Care Products

  • Shampoo
  • Conditioner
  • Hair products
  • Lotions
  • Makeup
  • Perfumes
  • Deodorants
  • Nail polish

Household Products

  • Air fresheners
  • Scented candles
  • Dryer sheets
  • Fabric softeners
  • Cleaning products

Food Storage and Packaging

  • Plastic food containers
  • Plastic water bottles
  • Plastic wrap
  • Certain canned food linings
  • Some non-stick cookware

Environmental Sources

  • Pesticides
  • Herbicides
  • Some furniture treatments
  • Certain stain-resistant coatings

One of the most common concerns is simply the ingredient listed as:

Fragrance

That single word can represent dozens. Or sometimes hundreds of undisclosed ingredients.

The goal is reducing your overall toxic burden where you reasonably can.

Some labels contain enough syllables to qualify as a spelling bee challenge. At what point does an ingredient list stop feeling informative and start feeling mildly threatening?

A Gentle Approach to Reducing Exposure

Put your garbage bags down.

You don’t need to throw everything away and start making your own soap from dandelions and determination.

You cannot eliminate every toxin.

You cannot control every environmental exposure.

And honestly, trying to do so would probably create more stress than benefit.

The goal isn’t perfection.

Small, sustainable changes tend to be far more effective than dramatic overhauls.

Start with one product.

Then another.

And keep going at a pace that feels manageable.

Homemade Alternatives

One reason many people choose homemade products is because the ingredients are simple, familiar, and transparent.

When you know exactly what’s in something, there’s less mystery.

You may also reduce your exposure to fragrances, preservatives, and other unnecessary additives.

Here are a few of my favourite homemade recipes:

Homemade Deodorant

Recipe @ healthylifetrainer Note: Unlike antiperspirants, which block sweat glands, this recipe functions as a deodorant. It helps control odour while allowing your body to sweat naturally. The other thing to be aware of is its ability to turn into deodorant soup when stored above room temperature. Store it in the cooler if you go camping!⛺️

Homemade All-Purpose Cleaner

Recipe @ lifelovelarson

Homemade Eye Makeup Cleaner

Recipe @ wholenewmom

Homemade Face Wash

Recipe @ Pinterest

A Forest Therapy Practice for Simplifying Your Routine

One of the biggest challenges with reducing hormone disruptors is deciding where to start.

Forest therapy offers a different approach.

Rather than creating a long list of things you have to change immediately, begin with awareness.

Take a slow walk in nature.

Leave your phone in your pocket.

Notice what catches your attention.

Listen to the sounds around you.

Feel the ground beneath your feet.

Allow your nervous system to settle.

When you find a place that feels inviting, sit quietly for a few minutes.

Ask yourself:

  • What products do I use every day?
  • Which products spend the most time on my skin?
  • Which products do I inhale regularly?
  • Which product would be easiest to replace?
  • Which change feels supportive rather than stressful?

Then ask:

“If I could change one thing this month, what would make the biggest difference?”

Forest therapy reminds us that healing doesn’t always happen through doing more.

Sometimes it begins by slowing down enough to notice what our bodies have been trying to tell us.

When I started forest therapy the trees and I got along immediately. Unlike my hormones 😖 😡.

Perimenopause

Slowly losing every chemical that was helping me tolerate people.

Health Is More Than Avoiding Toxins

Removing unnecessary exposures can be helpful.

But building health is equally important.

Sometimes we become so focused on what we should eliminate that we forget what we need to add.

The foundations matter.

Prioritize Sleep

Sleep is when your body repairs, regulates hormones, supports immunity, and recovers from daily stress. Clean up your sleep routine.

Eat Nourishing Foods

Focus on foods that support your body rather than aiming for perfection. Slowly move towards the diet your body needs.

Move in Ways That Work for You

The best exercise is the one your body can recover from. That answer looks different for everyone.

Get Outside

Sunlight helps regulate circadian rhythms, mood, and overall wellbeing. Get out in the first minutes of your day.

Nelipot

English; a rare and poetic word that refers to someone who walks barefoot, one who feels than earth beneath their feet, often implying a connection with nature or a simple, grounded lifestyle.

Put Your Feet on the Ground

Whether you call it grounding, earthing, or simply standing barefoot in the grass, many people report feeling calmer and more connected afterward. I concur.

Spend Time in Nature

Nature lowers stress, restores attention, and creates opportunities for rest and reflection. More than getting outside it is connecting with the natural world.

The forest continues to offer something many modern products can’t: simplicity. The more time I spend in nature, the more I understand why my body keeps asking me to return. The message is clear.

Less fragrance. More forests.

My nervous system is a strong advocate for sunshine, birdsong, and not reading every ingredient.

Why Forest Therapy Matters

Forest therapy isn’t about replacing medicine, specialists, or common sense.

It’s about creating conditions that support healing.

I’ve seen it support people who were struggling.

I’ve also seen it elevate people who were already doing well.

Nature doesn’t ask us to be healthy before we show up.

It simply offers an environment that encourages restoration, resilience, and connection.

Whether you’re managing chronic illness or simply trying to feel your best, time in nature can be one of the simplest and most accessible forms of self-care available.

Turns out one of the healthiest things I can do is wander through the forest looking slightly lost.

Final Thoughts

Nature has never pulled me aside to discuss my skincare routine. I don’t have to be a perfect version of myself before I can join.

It simply reminds me to take the next step.

Sometimes that’s all healing requires.

We can’t control every toxin, every chemical exposure, or every challenge life throws our way. But we can support our bodies through simple, consistent practices.

Sleep. Movement. Nutritious food. Sunshine. Fresh air. Time in nature. Small choices made repeatedly over time often have the greatest impact

Not because they’re dramatic. But because they’re sustainable.

And unlike the mystery bottle hiding under your bathroom sink since 2014, those habits never expire.

Maybe living your best life just means slowing down enough to see how good it already is.

You Are a Success Story

My physiotherapist, “J,” has been with me through it all.

She has seen me on some of my best days over the past 15 years of working with her.

  • The day I told her I was finally pregnant with the baby I had tried nearly a decade to conceive.
  • The day I said, “I’m running again.” After years of pain making even the thought of it feel impossible. My body has approached physical activity like a suspicious cat approaches a cucumber in the past.
  • She heard me process the long, exhausting teenage years of push and pull with my oldest child. And then my second. Followed by my third. The painful years that felt like emotional whiplash and then she celebrated with me when they all graduated. She understood firmly the mentality of, We did it! On each occasion.
  • She walked alongside me through buying and selling homes.
  • When Kenzie got engaged. Jamie transitioned. Riley moved in with his girlfriend.
  • When all three times I found out I was going to be a grandma, she was one of the first people to know.
  • When I started a forest therapy business and dared to believe healing could become something I offered others.

She has witnessed joy. Growth. Milestones.

We have laughed together as I walked around in a body that behaved like it’s been assembled from spare parts with vague instructions and one missing screw.

Proof that life can still bloom in hard soil.

And she has also sat with me on some of my worst days.

  • The day I fell off a boat and we both knew recovery would not be quick.
  • The years I fought to be taken seriously by medical professionals before finally getting the MRI that revealed my bone spur. Disappointing specialist appointments. Medical gaslighting.
  • Family job losses.
  • Kids in car crashes.
  • The miscarriage of the baby I had fought so hard to conceive. She cried with me that day. And the day I told her I was going ahead with the hysterectomy that closed that door entirely. We were so hopeful that would help my overall health.
  • Surgeries that did not go well.
  • The passing of dear friends.
  • The painful decision to close my business and then Brent’s and eventually to stop working.
  • Leaving the farm and grieving all that move represented. She understood, she’s a farm girl.
  • And the appointment Christmas Eve where she examined me and realized something was deeply wrong. I had almost no muscle mass. I was so weak and felt so broken, useless, a waste of skin.

I could write pages about what J and I have discussed over the years. At some point, she became more than someone treating my body. She became someone quietly witnessing my life story unfold.

The size of my kids when I started seeing J
The size of my kids today.

And then one ordinary appointment changed how I saw myself.

It started like any other. I explained where the pain was. What had shifted in my workouts. What stress was doing to my body. What daily life had looked like since we last met.

She examined me, worked through familiar areas of tension, and after a moment of silence she said something I think applies to all my chronic comrades:

“You’re a success story. Do you know that?”

My first instinct is always to deflect a compliment.

I think you have me confused with someone whose joints aren’t held together by determination and prayer alone.

But it felt true. It felt like the most true diagnosis I’d ever been given.

She continued, (and I want you to see yourself in this,)

When you look at where you’ve been on your lowest days and where you are now. This is a success story.

You could have closed the doors on life. Stayed in bed. Turned inward. Leaned into fear of the future. You could choose to live frustrated and depressed. White-knuckling your way through existence.

But instead, you keep rebuilding. You keep getting stronger. No matter what knocks you down, you come back.

Like one of those punching balloons from childhood. The ones you smack into the floor and somehow they pop right back up, mildly annoying and aggressively optimistic.

I have a core memory of my cousin’s party. They had one of those balloons in the backyard. As I played with it I wondered what was inside that made it keep popping up.

If resilience had a mascot, I might nominate a half-inflated punching balloon and a woman with heating pads.

J was right though. That’s me. That’s you.

What is it that’s inside us that keeps us popping up, time after time?

Not graceful. Not elegant. Occasionally leaking air. But still coming back up.

Again. And again. And again.

J encouraged me to start writing it down. My story. To let others read it. And that is where this blog began.

A success story, heavily disguised as a challenging life story.

Chronic Pain Does Not Stay in One Box

If you live with chronic pain, you understand this. Pain does not politely stay in your shoulder. Or your spine. Or your hips. Or your joints.

It leaks. It spreads.

It enters your sleep, your patience, your relationships, your finances, your confidence, your work, your parenting, and your identity.

It is never just physical.

The dis-ease spreads just like disease. Not because we are weak. But because pain is invasive.

Scars are not signs of weakness, they are signs of survival.

Yet many people living with chronic pain quietly continue. They raise children. Show up to work. Try to exercise. Cook supper. Pay bills. Care for aging parents. Smile through appointments (and cry after.) Fold laundry while wondering why their body feels like it was assembled by a distracted Ikea employee.

And still… they continue.

That is not failure. That is resilience. That is success.

Rock bottom became the solid foundation on which I rebuilt my life.

–JK Rowling

The Exhaustion of Not Being Believed

One of the hardest parts of chronic pain is not always the pain itself. Sometimes it is the disbelief. Unfortunately, this can include close family members. Friends. Employers.

And yes, medical professionals.

When symptoms are invisible, people often assume they are exaggerated. If scans are unclear, they question your tolerance. If you “look fine,” they assume you must be fine.

And so many of us become defenders. Explainers. Evidence gatherers.

Trying desperately to prove that our pain is real. Trying to earn validation. Trying to convince others that suffering exists even when they cannot see it.

But constant defense is exhausting.

As Dallin H. Oaks said:

When attacked by error, truth is better served by silence than by a bad argument.

That quote hit me.

We do not need to defend ourselves from every misunderstanding. Not every person deserves access to our explanations. Not every accusation needs a rebuttal. Not every skeptical glance deserves our emotional energy.

There is a time to inform. And there is a time to walk away.

Never wrestle with pigs. You both get dirty and the pig likes it.

–George Bernard Shaw

Silence is not surrender. Sometimes silence is strength. Sometimes it is peace. Sometimes it is refusing to spend precious energy proving your pain to people committed to misunderstanding it.

Do not explain. Your friends do not need it, and your enemies will not believe you.

–Elbert Hubbard

You Are a Success Story Too

If you live with chronic pain and still carry on…

You are a success story.

If you’ve had to explain your pain as a weird hip or angry neck. Here is your medal in interpretive medicine 🏅…

And you are a success story.

If, like my friend described it, you have been blindsided at a medical appointment and you keep seeking your answers…

You are a success story.

If you got out of bed today and every day, despite exhaustion…

You are a success story.

If you parent through pain…

You are a success story.

If you grieve what your body once was while still learning to care for the body you have now…

You are a success story.

If you feel misunderstood. Lesser. Frustrated. Invisible. You are still a success story.

Do not let anyone take that from you.

You never know how strong you are until being strong is your only choice.

–Bob Marley

A Forest Therapy Practice: Seeing Yourself in the Landscape

One of the most grounding practices I return to comes from forest therapy.

Take a small mirror with you into nature.

Stand among trees.

Or beneath open sky.

Hold the mirror so your reflection appears framed by branches, clouds, leaves, or light.

Look at yourself. Really look. See your face inside the larger landscape. Notice how you are not separate from nature. You belong here too.

Then ask yourself:

Where was I a year ago?

What have I survived?

How far have I come?

What strength still exists in me?

Appreciate where you are now. Not because healing is complete. But because progress deserves to be witnessed. And because you still have what it takes to continue.

Rivers don’t apologize for moving slowly at some points on their path.

Seasons do not shame themselves for resting.

Maybe we shouldn’t either.

My Success Story Is Still Being Written

I used to think success had to look polished. Strong. Linear. Easy to explain. Now I know better.

Sometimes success looks like rebuilding muscle. Sometimes it looks like surviving grief. Sometimes it looks like asking for help. Sometimes it looks like walking instead of running. Sometimes it looks like closing one chapter when life forces your hand. Sometimes it looks like bouncing back up like an emotionally exhausted inflatable clown with stubborn determination.

I have bounced back like a plastic bag caught in a prairie wind.

Messy. Crooked. Still rising. Still trying.

And maybe that is enough.

Actually

Maybe that is extraordinary.

You are a success story.

If pain has tried to rewrite your life and you still continue…

🫵 You are a success story.

And don’t you forget it. 😉

Diefenbaker Lake: A Childhood Sanctuary

Let the waters settle and you will see the moon and stars mirrored in your own being.

-Rumi

There are places that shape us before we’re even old enough to understand what’s happening. Places that imprint themselves on the soles of our feet, in the rhythm of our breath, in the part of our memory that feels more like home than any house ever could.

For me, that place has always been Diefenbaker Lake.

Some places are so deep inside us that we carry their shoreline in our bones.

-John O’Donohue

I’ve been coming here since I was tiny. Even before I had words for belonging, but somehow already knew I belonged here. Grandpa always made sure of that.

My grandparents had a cabin and a sailboat tucked along these windswept shores. Some of my earliest memories are stitched together with the smell of woodsmoke from backyard fires, the sweetness of my grandpa’s violin, and the rowdy chorus of siblings and cousins running wild between the cabin and the water. With the constant reminder to “wash the sand off your feet before you come in!”

And then there were the cozy, indoor moments that stitched themselves into my heart just as tightly as the beach days. Evenings around the table playing Phase 10, some of us a little too competitive for their own good. And we watched Bedknobs and Broomsticks over and over and over again. Never questioning why, just letting the magic and music wash over us like it was brand new every time.

Mornings were their own kind of ritual. Waking up to Grandma making bacon and something (it didn’t matter what, it’s the bacon that mattered) and the smell of fresh coffee drifting through the cabin. To this day, I associate the scent of coffee with pure happiness, because it always meant family, warmth, and the safe little world we built at the lake.

Teenage awkwardness made an appearance here too, because of course it did. Blushing, fumbling romances that felt monumental at the time. Even with his hair plastered to his face. Perhaps this was done by those winds that could have knocked over a small cow 🤔.

Speaking of cows. They are a regular feature of this lake that is surrounded by pasture land. Two rules. Don’t use a cow as a landmark when giving directions. They tend to move eventually. And don’t pick a beach with a cow path into the water. You can guarantee there’s a few cow pies in there.

Swimming lessons were basically an extreme sport back in my day. With waves bigger than me, wind that felt like knives, and instructors yelling cheerful encouragement while I questioned all of my mom’s life decisions that brought me to this point.

Still, I kept going back.

I lived for the days Uncle David would haul out the power boat. Kneeboarding, tubing, laughing so hard my face hurt. Those were the moments that made childhood feel endless. We’d tear down the path to the beach, towels flying behind us, younger siblings and cousins trailing like joyful chaos. We swam, we snacked, we visited, we repeated. Every day was an epic saga of sunshine and soggy towels.

Sailing days were their own kind of magic. My mom loves to retell the story of my sister and me being so little our feet didn’t touch the floor as we sat at the table down below. Meanwhile grandpa and dad were tacking hard and smiling harder. Every time the sailboat leaned, we’d just… slide helplessly under the table like tiny bewildered penguins. Apparently we were adorable. At the time, I remember thinking, Is this normal? Are we sinking? Should I be able to see the lake out that window?

Dad and grandpa were always smiling so I took that to mean we were safe.

As I grew older I loved sitting at the very front of the sailboat, facing forward, wind whipping around me, I felt like I was flying. When the water was calm, the spinnaker would make an appearance billowing out like a living thing. My grandpa worked the ropes and held the tiller with the easy smile that only comes from loving a place so much. Those are memories I hold like treasures.

And now seems like the appropriate moment to confess something to my parents…

I did, in fact, steal the keys and “borrow” the cabin for one weekend as a teenager 😬. I had “a few friends” over. I threw exactly one party in my entire life. And I was so sick with worry the entire time that I basically grounded myself for the rest of my adolescent years. Lesson learned. Sorry. Mostly. It’s been a good story over the years.

I spent my honeymoon at the lake- 26 ½ years ago. We fished, built sandcastles, and solved the great riddle of rural Saskatchewan: there are no gas stations open on Sundays. (At least, not back then.)

About five years ago, my parents bought their own place by my lake It took a some time but something inside me reconnected. Something long since silent woke back up.

I listen excitedly to hear about the ice breaking in the spring. The booming, cracking, shifting sound like the earth stretching after a long sleep. Then, in an instant it seems, the ice is gone. Summer brings shimmering waves, familiar laughter, and barefoot days that always feel too short. Fall arrives in gold and red and farewell winds. Winter… winter brings a darker, quieter beauty. A solemn stillness that somehow feels honest. Vulnerable.

The older I get, the more I find that the quiet places are the ones that speak the loudest.

-Unknown

We’ve camped along these beaches. We’ve laid in the sun. And now, when I head out on my power boat with our next generation, I think of Uncle David. I feel him in the hum of the engine, in the ripple of the wake, in the bright splash of joy that comes with speed and water and family.

The pinnacle of our lake experiences has to be when we helped save our friend’s boat from sinking. When the bladder around the leg came off and they started taking on water, they quickly headed to the boat launch. Seeing they wouldn’t make it, they beached the boat. Then with two other power boats and a cacophony of helpers, they managed to get two boat tubes under the leg and the front of the boat. One of the support boats towed. Two people bailed. People sat on the tubes to balance. And in this ridiculous state we slowly made our way through the marina and up the launch. To the laughter and cheers of watchers nearby.

I have found beauty in the whimsically ordinary.

-Elissa Gregoire

These days I walk the trail by my lake often. I slow down. I breathe.

And somewhere along the way, I realized,

This place has become part of my healing.

Chronic pain forces you to live differently. More slowly, more intentionally, more gently. Forest therapy taught me to seek connection with the natural world, to let my nervous system rest in the presence of trees, water, sky. And here, wrapped in the sounds and rhythms of my lake, something in me softens. Pain quiets. My body remembers safety.

When the heart is overwhelmed, the earth invites us to rest.

-Unknown

My parents host endlessly now, filling their summers with family, friends, neighbours. Anyone who needs a taste of peace.

They are the sailboat owners. And they love it just as much as my grandpa did.

The legacy continues, like wind passing from one generation to the next.

My lake is healing. This home of my parents is healing.

And after all these years, I am still finding new ways to belong here.

There are days the lake knows my story better than I do.

-Unknown

Fluctuat nec mergitur (latin phrase):

She is tossed by the waves but does not sink.

An Ode to My Lake

O Lake of my childhood, keeper of my summers,

You who taught me courage in cold waves

and laughter in the spray of speeding boats

I return to you again with a heart that remembers.

You cradle my earliest joys.

Grandpa’s violin threading through evening air,

firelight warming our faces,

cousins tumbling down the path like wild things set free.

You were witness to awkward teenage hopes,

to frozen swimming lessons and winds that stole my breath,

to stolen keys and the single party I regretted

before it even began.

You held my honeymoon,

my young love learning its way,

and you held me still years later

as chronic pain reshaped my life.

Now I walk your trails slowly,

letting forest therapy guide my weary body

back into rhythm with the world.

Your waves teach me presence.

Your ice teaches me patience.

Your seasons teach me trust.

Grandparents gone on, Uncle David gone on,

Memories gone on,

yet their echoes remain in your wind.

In every sail that fills,

in every motor that roars to life,

I hear them.

My lake,

always changing, always faithful,

you have become a sanctuary,

a place where the ache eases

and beauty remains.

Thank you for holding my childhood.

Thank you for holding my healing.

Thank you for holding me still.

My lake.

Some memories are not moments at all, but places.

Victoria Erickson

🌲When Comparison Becomes a Thorn in Your Forest 🌳

Sometimes my life feels like a forest—dense, shadowed, and uneven.

Everyone else seems to walk a wide, sunlit path: their maps are clear, their steps steady, their packs light.

Meanwhile, I carry heavy bundles of pain and medicine, stumbling often, wondering if I’ll ever catch up.

~Cue the tiny violins 🎻 🤭~

Beyond the Familiar: Embracing a Different Forest

My therapist keeps telling me to stop comparing myself to other people – that life’s not a competition. Which, to be fair, is exactly what I’d say to someone I was trying to beat, too.

-from 22 Quotes About Chronic Pain

Comparison is never useful. It’s like measuring trees by how tall they look in someone else’s forest, forgetting that soil, roots, storms, and sunlight differ wildly. 

Or like judging an oak tree by how quickly the wildflowers around it bloom. Different roots, different seasons, different reasons for being.

And yet I fall into it—measuring my path against someone else’s trail, forgetting we are not even walking in the same terrain.

Comparing … is a waste of time and effort; we are all different people, experiencing and feeling things differently.

San Diego Prepare Yourself: Sisterhood Adventures Await

Next month, my sisters will gather in San Diego. I am so excited for them. And to hear about their adventures. Sunshine, laughter, time to connect. It’ll be fabulous.

I would love to be there. But the cost of my monthly medicine is about the same as what that trip would take.

I live in a different economy—the economy of pain management. So instead of boarding a plane, I stay home.

~Poor lil’ me 🥲👉👈 🤣 ~

It’s hard not to compare. Their togetherness, my absence. Their momentum, my stillness. I remind myself that longing is not failure—but it still stings.

Screenshots of a Life I Don’t Live: Family Call, Personal Spiral

On a recent morning: my sister called from her vacation in London. On a family video call. At 9 a.m., I was still coaxing my muscles awake.

I listened to the bagpipes she was sharing and checked out the sights in the background. I marvelled at what she has been able to accomplish and see in her life. I joy in her success.

Inevitably another emotion starts to rise. As on the screen, this is what I see:

  • One sister in her home office, thriving in a job that suits her perfectly.
  • Another in her kitchen, caring for her family and home.
  • A sister-in-law outdoors, likely at the park or on a walk with her two littles.
  • My parents smiling in their living room, enjoying retirement and seeing their family.
  • And then there was me—tired, clearly still in bed, clearly accomplishing nothing.

That’s how I saw it. In truth, no one said that. But comparison painted me useless in bold letters across the screen.

~Woe is meee 🐌💤 😜 ~

A Sermon I Couldn’t Speak

At church, I tried to answer a question on a bad pain day after a sleepless night. My words came tangled, incomplete.

I saw my husband’s face and thought, I’m taking too long. I gave up. Without tying my random thoughts together. And I gave him the microphone. He expertly gave a clear, concise answer that was perfectly on point. My effort looked weak next to his polish.

Comparison whispered: why even try?

Fredrik Backman once wrote:

“My brain and I, we are not friends. My brain and I, we are classmates doing a group assignment called Life. And it’s not going great.”

But here’s the truth: trying counts. Even stumbling words are a kind of courage.

The Math of Measuring Up Never Works: The Broken Ruler I Keep Using

Comparison is a thief. It always leaves you with less than you started.

It’s like weighing a feather against a stone and expecting the scale to balance it out. It demands a sameness life never promised. It blinds us to the worth in our own story.

As a people, we tend to magnify the strengths and blessings another person receives. But minimize our own gifts, talents and opportunities. Social media is as helpful as a screen on a submarine when it comes to perpetuating this problem.

There’s no hierarchy of pain. Suffering shouldn’t be ranked, because pain is not a contest.

No one truly wins the “Pain Olympics”.

–Lori Gottlieb

Living with chronic pain means my days will never look like someone else’s. But that doesn’t mean they’re lesser—it just means they’re different.

Brene Brown says:

Fear and scarcity trigger comparison and we start to rank our own suffering.

Brown calls this comparative suffering. She goes on to say,

The opposite of scarcity is not abundance; the opposite of scarcity is simply enough.

Empathy is not finite, and compassion is not a pizza with eight slices. When you practice empathy and compassion with someone, there is not less of these qualities to go around. There’s more. Love is the last thing we need to ration in this world

This toxic pattern of comparison blocks emotional processing and prevents genuine empathy, creating isolation rather than connection. 

My worth is not judged by what I do in comparison to others, but by what I do with what I have—what love, what compassion, what presence I can offer. Even just in showing up.

Measuring By Love, Not Ladders

I’ve decided to measure my life by something else: in every conversation, I want the other person to leave feeling better about themselves than when we started.

If they do, then I’ve accomplished something real. It may not be a promotion, a trip abroad, or a picture-perfect moment. But it’s love, and it’s within my reach.

In such a headspace there should be no time for shame and comparing. Only felicitations and adulation.

Broken But Still Moving

Mandy Harvey is a singer/ songwriter. I saw her on an America’s Got Talent clip. Mandy lost her hearing when she was 18. Interestingly enough she has EDS which is similar to my connective tissue disorder.

On the show, she spoke about initially going to dark places. And when she decided she wanted more for her life, she wrote this song. And performed it in front of a live audience and judges and cameras.

She beautifully sings,

“I don’t feel the way I used to / The sky is grey much more than it is blue / But I know one day I’ll get through/ And I’ll take my place again… So I will try…

There is no one for me to blame/ Cause I know the only thing in my way/ Is me…

I don’t live the way I want to/ That whole picture never came into view/ But I’m tired of getting used to/ The day

So I will try..

Those words hold me when comparison tries to unravel me.

Forest Therapy: A Way Forward

If comparison is a thorn, forest therapy can be a balm.

The forest floor is messy. Layers of leaf litter, moss, dead wood. It doesn’t pretend to be clean and perfect. It is rich because of its imperfections.

Your struggles, limitations, pain give richness and texture to your life story—not flaws to hide.

Walking a path in woods, you may have to step over roots, navigate mud and stray branches. But each step gives you awareness, grounding, breathing space.

Comparison often makes us spin like leaves in the wind; forest therapy anchors us.

When comparison grabs tight, I go to the woods.

The forest does not compare:

  • Trees don’t measure their height against one another.
  • Moss doesn’t resent the ferns.
  • Streams don’t ask why the river runs faster.

Each element grows where it is, as it is. That is enough.

Roots, Rituals and Small Resets

Here are ways the forest has supported me:

Leaning against a tree and letting its rootedness remind me that I, too, belong.

Listening to the birds until my thoughts soften.

Sitting by water and imagining my comparisons floating downstream.

From Forest Floor to Open Sky

Yes, I still compare. Yes, it still hurts. But when I remember that comparison steals joy, I find space to choose something else.

I may not be in San Diego, or London, or even fully awake at 9 a.m. (to those who are, Have as good a time as possible, given that I’m not there. Heehee 😊)

~Life said nope 🙃🍋~

I can still offer kindness, presence, and love.

And maybe that is enough.

I want to feel good about my life. Not in the sense of “as good as anyone else,” but as my life, full of the shape I have.

Chronic pain is part of the soil I grow in. It’s changed what I can do, yes—but also deepened what I can feel, what I can appreciate.

If everyone else seems to be walking on sunlit paths, I may be walking in dappled shade, or in a different time of day. But my path is still mine, and still worthy. Because even in the shaded parts of the forest, light still filters through.

🍂Forest Therapy: A Refuge from the Battle of the Pill

If I stand on my tip toes I can see autumn from here.

-Unknown

There are nights when pain feels like a forest fire. It consumes everything, licking at nerves, muscles, and bones, until even the smallest ember becomes unbearable. For me, forest therapy has always been a refuge—trees that don’t ask me to explain, the wind that listens without judgment. But no walk in the woods can erase the reality of the deep harm that comes when the medications I rely on are suddenly out of reach.

Biophilia

the ancient memory that li ves in our bones- a quiet longing to belong to the earth, a deep and sacred bond that awakens our senses and nurtures our souls.

Tales from My Trek

Recently, I went to fill my prescription. It’s a narcotic, tightly controlled with a note that says it can only be filled every 30 days. The problem? It was day 29, and I was out. 😳

For some prescriptions, waiting until the next day is an inconvenience. But when you’re on a heavy narcotic at the highest dose, one missed pill isn’t just painful—it’s catastrophic.

That night without medication meant I wasn’t just “in pain.” It meant shaking, twitching, and detoxing against my will. For a medication I’d have to take in the morning!

I’ve missed this pill before. My body, already fragile, spiraled: my nervous system hijacked by fight-or-flight, my hormones in chaos, my temperature regulation broken. I’d overheat, then sweat, then shiver, round and round. All while my pain screamed louder and louder. It is my definition of Hell.

And the damage doesn’t end when the sun rises. One night like this unravels days—sometimes weeks—of careful work to bring my nervous system into alignment. Forest therapy sessions that usually soothe my body’s alarms are erased by the fresh trauma of unmanaged withdrawal.

One pill—just one—becomes the difference between fragile balance and collapse.

The Pharmacy Door 🚪

This wasn’t the first time.

Years ago, when I was short on medication, it was actually the pharmacy’s mistake. A tech who knew me—a kind soul who remembered my name—looked closer. While others repeated, “Sorry, you can’t have more. Come back tomorrow,” he dug into the records and discovered their count was off by the exact number I was missing. He trusted me. He believed my story. He saw me.

This time was different. My tech friend wasn’t there.

When this new tech told me I couldn’t have more until tomorrow, he must have seen the terror in my eyes. Or noticed me standing in shock for 5 minutes. Just standing by the pharmacy. Holding back tears, while physically and mentally spinning in circles. But instead of offering solutions, he shrugged and said, “Come back in the morning.”

Being someone who hates to cause a stir, I went home. But home is where the panic broke through. I sobbed uncontrollably. My body already gearing up for withdrawal.

Then I realized: silence won’t help me survive this.

I called back. I asked about options. The tech said I could talk to the pharmacist. Why wasn’t that offered before? 🤨

When I spoke with the pharmacist, his tone was dismissive, almost mocking: “So what do you want me to do about it?”

I explained again, told him what would happen if I went without. He finally asked if I’d even come pick it up that night IF he were to fill it.

Sir, I thought, I just told you what a night without it would do. Do you think I’d let that happen if I had any choice?

Eventually, he relented and filled it twelve hours early. I picked it up feeling like I should bow at his feet in gratitude. As if he’d granted me a favor rather than spared me a night of needless suffering. I felt the need to thank him repeatedly.

The petty side of me still wants to send him a Get Better Soon card. Not because he’s sick. But because I think he could do better. As a human being. I’d have to send it anonymously because this is not a person I want to be on their bad side.

The Bigger Picture

I know narcotics require tight monitoring. I know the system has to guard against abuse. But what about patients like me—the ones who never asked for this, who were put on these medications by doctors, and who don’t have the option of just going off of them. When there is something physiologically happening that is not right.

If only I could put into understandable words. This is what is happening everywhere in my body. ☝🏼

Why does losing one pill make me look like a drug seeker? Why is my lived record of years not enough to earn trust? Why is the assumption always suspicion?

Do they want me to be all natural? Do they realize it is people like me who keep them in business? I literally pay their bills!

I wouldn’t have to if I could live every day in the forest—if I could soak in the mossy quiet, breathe in the pine air, let the gentle rhythm of birdsong reset my nervous system—perhaps I wouldn’t need the pills.

But my reality is different.

My reality is managing chronic pain in a system that too often treats me like the problem instead of the patient.

🍂 Whispers of the Woods

As I write this, I think of a line from poet Wendell Berry:

“The care of the Earth is our most ancient and most worthy, and after all our most pleasing responsibility. To cherish what remains of it and to foster its renewal is our only hope.”

What if the same was said of patients? To cherish them. To foster their renewal. To see them not as potential criminals but as human beings navigating unbearable pain.

Another lesser-known verse comes to mind from Antonio Machado:

“Between living and dreaming there is a third thing. Guess it.”

For me, that “third thing” is surviving. It’s clawing through nights without medication. It’s cobbling together therapies—like time in the forest—that offer some relief, though never enough.

Compassion: The Heartbeat of Humanity

I don’t have the solution. But I do know this: when we treat patients like addicts instead of people, we add more pain to lives already saturated with it. I believe we can find a way to monitor responsibly while also practicing compassion, dignity, and trust.

So I’m asking you: have you experienced something like this? Have you been caught in the impossible bind between regulations and your own survival? Do you have ideas for how this system could better serve those who truly need it?

Share your thoughts in the comments. Let’s start a conversation. Because one pill shouldn’t have the power to undo everything.

It was a lovely afternoon-such an afternoon as only September can produce when summer has stolen back for one day of dream and glamour.

-L.M. Montgomery

An All-Too-Familiar Tale in Misdiagnosed/ Underdiagnosed Female Chronic Pain: This Is My Story

In today’s post I’ll be sharing more about my joint hypermobility diagnosis journey. Due to brain fog and the length of time this went on, my chronological ability is a tad sketchy. Regardless, the emotions and the pain of my story are real.

I hope you can’t relate to my story. But I’d love to hear from those of you who have also experienced a diagnosis nightmare. Particularly those with hypermobility.

From Spark to Flame

In the spring of 2011 I was tired of the sharp pain in my left armpit. It had been happening on and off for years. I didn’t have the brain power or the time to deal with it. I had three little kids instead.

That year I planned on going back to work as an EA. My kids were school-aged. And I was going to take the EA course that fall. Being on my feet more often without the ability to rest when I needed was a game changer. But not in a good way. Sitting in a chair for 6 hours a day for school was brutal.

The Beginning of a Beautiful, Medically-Invoked, Friendship

I started seeing a physiotherapist. She was heralded as one of the best diagnosticians of joint and muscle pain in town.

I will be forever grateful for the referral that sent my brother to see her after his knee injury. Which led to a referral from my mom that I should see her.

She has been with me from that time. She has saved my life in more ways and more times than I can count. She is my superhero.

From our beginnings, J walked by me through the process of navigating the medical field. With chronic pain. As we became friends and she learned about me and my family, she also became a trusted counselor. As she saw me opening to other forms of therapy, she shared her knowledge of energy therapy. When she learned my kids all have ADHD like their dad. She gave me hope and help on that subject too!

In her role as a physiotherapist, if she’d had the authority to order tests. I believe my diagnosis journey would have been completely different. But that is neither here nor there. Because I did not have access to a comprehensive team of doctors. I was the one running between and trying to pass on messages. I got them mixed up or had incomplete information. The doctors didn’t seem to care what J had to suggest.

So while J kept putting me back together and giving me exercises, the doctors kept telling me I was fine.

Doctors: Just work with a physiotherapist. It’s not a medical issue.

On the other hand, I would sneeze and feel something rip and go cold in my left shoulder blade area. I’d go see J and she’d fix me.

I’d wipe a counter and the same sensation. Back to J. She suggested something deeper was happening. (of course all she can do is find the spots that need fixing and fix them. She can only work with the effects something is having on the joints. She cannot see or fix the joint itself. Only its placement in the body,)

Coldplay Has Got Nothing on my J: She Will Try To Fix Me

I’d fight with doctors to give me an ultrasound. I’d experience deep pain in the exam as they shoved the paddle into my abdomen and groin. Often trying to locate missing organs. They always showed up eventually.

***TEST RESULT NORMAL***

Chiropractors.

***DIAGNOSIS: you’re out in a few spots. *crack*

Me: (walking out the door and looking down to step over the ledge)*crickety crack crack pop*

I’d go back to the doctor. Same procedure every time. They’d want to know where the pain was coming from. (everywhere) They’d ask how the pain felt. (depended on the day) They’d ask what made the pain worse. (being mobile, living my life) They’d want to know what made it better. (laying down, not moving)

“Well Pam, you can’t lay on the couch and expect to get better” (actual comment from an actual doctor that had a quick chat with me over the phone, I thanked him)

Me: Thank you. Good day.

Doctor: There might be something I can do, just don’t get your hopes up.

Me: I said Good Day

(maybe not those words but that was the tone)

This was always hard to hear. I had been running and working out before the pain got unbearable. And then I’d try again. J would ask when the pain started. (the day after I tried to jog. I just lifted 5 lbs a few times and then a few more the next day, etc.) I’d flare. My joints would be less stable. Back to J. She was always so kind and just put me back together.

I wanted nothing more than to run and workout. The doctors would have me move this way and that. Lift this arm. Touch the floor and come back up. Any pain? Now? Now? (nil, the pain would surface the next day though, and it would bring reinforcements.) But the appointment was over and the doctor wasn’t there to see that happening. So it wasn’t in the charts.

I don’t know what my doctors wrote. But due to no further investigation, I am led to believe it was something like the following.

***DIAGNOSIS: Kinesiophobia (fear of movement)/ Agoraphobia (fear of open situations: due to potential for unexpected pain and inability to attend to it)***

Back to J. She would put back all the spots that the doctors had unwittingly subluxed with the tests. J looked at the pattern.

***diagnosis: extreme hyper mobile joints*** but this was not a diagnosis the doctors wrote down or understood

Diary of A Misunderstood Patient: “I Tried to Tell Them”

I don’t blame the medical professionals in the beginning. But as the situation went on and I tried to tell them how this would go.

“I will do the tests. It will not cause me pain now. Because I have extremely mobile joints. And tomorrow due to shifting and stretching those joints outside their comfort zone, they will sublux. The pain is not in that shift. The pain is from the muscles that are left to hold that spot together. Now that the joint is no longer capable of doing its job. That muscle will get more and more sore as it holds and holds anytime I am mobile. It will eventually give out. Another muscle will get involved. And so on down the line. While this is happening this joint will have more stress on it. Initially just the joints around the unstable one. But eventually leading to my main muscles and joints. It will cause great pain.”

Doctor: OK, so you can do the test?

Me: (blink, blink) Yes

Doctor: If I don’t do this test, I can’t diagnose you.

This became the answer from specialists I waited months to see. I couldn’t give up the chance for answers. So I would do the test.

***DIAGNOSIS: NORMAL***

***TEST RESULTS for their specific specialty: NORMAL***

Back to J. She would inquire how things were going as far as tests and treatments from the medical side. I saw pain in her eyes as she saw the misery and agony I was going through. In this process. And physically.

It was draining the life out of me. J was always careful not to complain. She would never say anything unkind or unhelpful with reference to doctors or their way of doing things. It was as though she had been there herself. And was at peace with it.

The Final Act: With Room For Improvement

During my “end-of-the-line-of-specialists” appointment with a rheumatologist I broke down. I sobbed to her. Something was wrong and nobody could find it. Everything was coming back normal. She said it had nothing to do with her specialty. But she would send in a request for an MRI.

I wanted this test to show something so bad. It seemed like such an odd thing to hope for. To be diagnosed.

I had the MRI. I waited to hear back from my family doctor. She said they found a tiny bone spur. In my shoulder blade region. It was creating inflammation in the tissue and everything else in the area. Every. Time. I. Moved.

***DIAGNOSIS: bone spur***

I felt validated. Finally! Someone saw something! My pain was real!

I waited to see a shoulder surgeon. He told me my bone spur was so small they normally wouldn’t operate on it. But I did have a small area for it to fit. So if I wanted they would do surgery. Um yess please. Please fix me.

***TREATMENT: surgery to remove “tiny” bone spur***

I waited more months to hear when the surgery would be. Then I waited months for the actual day.

I should mention that through this time I was also diagnosed with endometriosis and its ensuing pain and surgery. Every couple of years they went in to scrape out the scar tissue. And put my organs back where they were supposed to be. I was having more and more trouble recovering from surgery. The internal inflammation was crazy.

The Road To Being Un-Recovered

After my shoulder surgery I was so relieved to have that nasty scoundrel out of there.

But the recovery from this surgery was particularly difficult. The years of waiting for the next specialist. The next test. The next referral. Had worn down my body. Months of lying down whenever the opportunity presented itself at the end of a workday. The end of putting kids to bed. The end of the cleaning and laundry. It always had to wait. But the lying down instead of working out were creating more tell-tale signs that something was wrong.

After this surgery. My mouth had a pesky sore on it from the breathing tube pressing my lip between it and my teeth. Making it hard to eat anything. The pain of the gas they pump into you, moving up and out, was almost unbearable. It felt as though parts of me were being ripped apart.

The shoulder pain where the surgeon had used a knife and some did some cauterizing was fine. But the neck pain where they had twisted my head to get the right positioning. Had caused several exceptionally painful subluxations there.

I had to wait a certain time before I could see J following the surgery. It was agony. I was propped and pillowed. I used my cold therapy machine for my shoulder on my neck instead. Nothing helped. The strong meds they give following surgery are only prescribed for a certain time. I get it. My inflammation in my mouth (now I understand that was due to thin lining of my lips and mouth). My internal inflammation from the surgery. My unbearable pain in my neck. Were just starting to ramp up.

I called my doctor. She reluctantly, out of the goodness of her heart. Prescribed a few more but that was really all she could do. No more!

***DIAGNOSIS: drug seeker***

I suffered so much during that time.

It took most of a year to see the inflammation go down. About five years until I didn’t notice its effects anymore. So that tiny little bone spur had me struggling to workout for years.

Medicine vs The Patient

I never got to the point where that was fixed and all was well. Because during those years I also had pain and inflammation with my endometriosis. So many medications and therapies were offered that did not support my needs as a hypermobile patient. According to all the specialists, that diagnosis didn’t apply to what they were doing.

Somewhere in the following years my SIL told me about a syndrome she’d heard about on a show. It sounded a lot like what she knew about me. I have had so many suggestions from those who mean well. Making it hard to listen to them all. But this one stuck. Once she mentioned it, I noticed it being talked about in other arenas.

Ehler’s Danlos Syndrome. I did some research and it sounded like a plausible diagnosis. I mentioned it to my doctor and they dismissed it as a diagnosis that you either have or you don’t. There is no treatment. She ran through a few tests and didn’t mention it again.

I had a hysterectomy that fixed some issues but created a host of others. A story for another time.

I switched doctors. Again. A painful but necessary process every time. This doctor wondered why previous doctors hadn’t gone through the Beighton score tests.

We did those. I passed with flying colors in one section. But didn’t quite meet the qualifications in another. So technically I don’t have EDS. But I have hypermobility. Which nobody in the medical world other than J, seems to think is an issue. My doctor has ruled it out. Due to being one check mark shy on a page.

It isn’t his fault. But without that mark I am still just a kinesiophobic, agoraphobic, with unknown causes of depression and anxiety. Quite needy and schedules multiple pointless appointments. Low pain tolerance. Who lays on the couch all day and expects to get better.

From Limitations to Peace

Through the years, I tried to get stronger physically. I couldn’t run. It put the bones in my feet out. When I tried to do functional movement, one joint or another did not like it. Inflammation, subluxation. Back to J.

She would give me gentle movements to keep my functional movement in check.

A slip on ice. Run into by our pig. Dog head to my thigh slam. Another slip on ice. Mowing the lawn putting me into spasm (we lived on an acre and mowed with a push mower). Cleaning a pool. Bending into the fridge the wrong way. Sitting to teach piano. Stand you say? That creates the need to bend over to point at the page. I tried everything. Yet by living my life, my bones would inevitably shift and get stuck.

Where a typical person’s joints would not bend that far. Their connective tissue would hold them together. Protecting them from a subluxation.

In 2020, unrelated to the pandemic that was ramping up, my body was shutting down. The years of pain from living with unchecked torture, had taken their toll.

My nerves were showing more and more signs of wear and tear.

Over the ensuing years, I was seeing less medical specialists and more natural alternatives. I was finding my way to my healing.

More diagnoses from a naturopath. At first I dismissed them but now I feel and see the effects daily. #theydoexist

***DIAGNOSIS: fibromyalgia, myalgic encephalomyelitis chronic fatigue syndrome***

***TREATMENT: rest when you can, listen to your body, supplements, etc***

I saw a holistic health practitioner at the end of 2020 when my mom thought I was going to die. We were living with them on the farm at the time. And she saw what was happening. The strain my body put on me. And that my ability to fight back was waning. She was right. I see it now.

From then on, I listen to those who tune in instead of out when I mention those diagnoses. And healing has followed.

Diagnosis: Indifference to the Unknown

I still have no hypermobile condition diagnosis. I don’t really care anymore. I have found a community in those with EDS and other hypermobile joint conditions. As I listen to my nerves, my body designs a space for mending to transpire.

Treatment: Based Solely on the Needs of The Patient, Me

Energy work and emotional healing has been critical for means of growth.

The forest incorporates it all. Energy work. Emotional healing. Physical effort (not past your limitations). Rest (to the bones, spiritual, emotional, mental). Creating better pathways for focus (through awakening the senses and meditation and creativity).

Perks of Nature: The Phenomenon of Forest Therapy

Plus the benefits we garner solely based on practicing forest therapy. A stronger immune system response. Lowered cortisol (less stress). Improved mood (decreased tension, increasing feelings of vigor). Cardiovascular benefits (decreases blood pressure and reduces heart rate). Sharpened cognitive activity (increased function in the prefrontal cortex). And plenty more.

I have medication for my nerves which keeps most of the buzzing under control. And another for my “mystery” anxiety and depression. I believe there is a place for the medical world. It serves a vast purpose. But it did not serve me when I needed it.

I do not blame any person or hospital. I strongly believe the dilemma starts from a lack of proper education and awareness surrounding chronic pain. And where it is coming from. Not every diagnosis has a box to check yet. When the symptoms and diagnoses are not lining up for anything in the medical books. Listen to the patient.

You’re the Bee’s Knees, Thanks for Being Here!

To those who listened and payed attention and supported. Thank you. To my mom. To J. And to my SIL who saw a show and put more 2’s together than all my doctors combined. Thank you.

To all who read this far. Thank you!

Some of you will find reading a blog enough. But some of you will want to dive deeper. That’s where I come in. I have the desire to share what I have learned. Through the practice of forest therapy. If you’d like to see what forest therapy is all about and why a guided practice can take you deeper. Go to my How To Get in Touch page. And send me a message with your name and contact info. I will be sure to include you in my next forest therapy session.

🎵 Into the unknown! Into the unknown! Into the unkno-o-o-own! 🎵 And I’m okay with that.

Survival to Stellify: Rising From the Ashes to Be Placed Among the Stars

Stellify

means to turn into, or as if into, a star, to place among the stars

I did not crawl through the shards of my own brokenness to live a mediocre life, I’ve prepared for magic.

–Mandy Lauren

Chronic Pain Unveiled: Wisdom That Shifted My Mindset

In the midst of chronic pain and disease, the thought that life is magical? Ha! Ludicrous!

During the days of my worst pain, it was difficult to see anything other than myself. Pain makes us turn inward. To see what is wrong and what we should do to alleviate the suffering. In a chronic condition, over and over, those efforts to treat inwards are unsuccessful. From such a position. I did not have a good sense of what I had to offer the world from my bed. I lost track of who I was.

If you think you are too small to be effective, you’ve never been in bed with a mosquito before.

Then I started to read quotes such as the following:

On the days you have only 40% and you give 40%, you gave 100%.

–Jim Kwik

This was big news to me. I thought giving my best meant wearing myself out. physically and mentally. Disregarding any symptoms of unease. Only then could I say I was doing my best.

On your worst days, you have to believe that there is still something beautiful left inside of you.

–faraway

I thought this was a good concept but I didn’t believe it until I did the work to see it.

experience taught her. hurt raised her. neither defined her.

-adrian michael

Believe there is a great power silently working all things for good. behave yourself and never mind the rest.

-Beatrix Potter

I Am Not Unique and Our Purpose Here

I am one of many who have been witness to miracles in their life. I am also one of many who have witnessed a lot of pain. My hope is to find followers through this blog. Those who will get a boost from what I have to offer. Who are struggling in some way. That is what makes my pain worth the cost. If it can be of some good. My hope is to share what I have experienced so that others won’t feel so alone on their darkest days.

After reading these and other such quotes. I sensed a budding clarity. I started to think maybe there were enough pieces of me left to work with. As I focused my efforts to rest and only move when I needed to exercise. I read and listened to uplifting and motivating books and podcasts. I used my days to take in relevant information. And I learned from the experience of others.

Months turned to years. I was starting to put the pieces back together. One at a time. I still don’t know how they all work together. Often the process is one of trial and error. But I know when something is right for me. When to put in effort knowing I will reap the benefits in time.

A Delicate Dance of Emotions: E-VALUE-ation of Self

Kaiho

A Finnish word meaning “longing” or “nostalgia”, even a “hopeless longing”

At that time, I still longed for the life I had planned. I acknowledged a feeling of kaiho, I knew my planned version of me would never come to existence. I think it was important to have a time of mourning and to admit the loss. But I didn’t want to live in the neighborhood of kaiho. Although I do visit from time to time.

As I came to better understand my chronic pain, I learned to live in this new body. I learned to listen better to my soul. My body and spirit. And less to my mind. I learned that my mind will lie to me. But my body and spirit, if positively aligned, will never lie to me. They will always direct me to my highest good.

I no longer feel like a few mental illnesses stuffed in a trench coat, stumbling around. Trying to portray to the world that I am fine. Those mental illnesses are part of me. They are part of the fire I have been through. A monument to the cost of dark experiences.

I cultivated an understanding of ways that brains work. How they will first ask, ‘Am I safe?’ they will ask, ‘Am I loved?’ when the answer to both of these question is yes, then they can be open to learning and growth. I could see why my growth had been stunted for so many years. I would not have been able to answer yes to both.

The Quirky Cravings of Our Bizarre Species

I studied the needs we inherently have as human beings. I started to meet those demands for myself. Instead of expecting anything from others.

Physical: food, water, air, shelter, sleep, safety, exercise

Connection: we all have a desire for belonging and acceptance from a community (I built a community where I feel heard, seen and loved)

Meaning: to have purpose and to matter, learning, growth, creativity, and consciousness

Autonomy: to be independent, to have the freedom of choice and space

Play: sprinkling in humour and joy, even silliness to the mix

Authenticity: to be able to trust and show a genuine illustration of ourselves

The degree to which a person can grow is directly proportional to the amount of truth they can accept about themselves without running away.

-Leland Val Van De Waal

Harmony: everyone needs a level of peace and tranquility in life, to see order and inspiration

My Ongoing Journey: A Non-Exhaustive List of Lessons Learned

I began to cultivate an attitude of gratitude. Which changed the landscape of my brain. I learned that as I practiced gratitude on a daily basis. The regions of the brain associated with reward and emotional regulation are boosted. Over time the neural pathways I was creating, in gratitude practice were making it easier to focus on positive experiences. Serotonin and dopamine production was boosted. Helping counteract stress and anxiety. Gratitude is described as a natural anti depressant. Helping improve your mental health.

I found my greatest supporters. From a small girl with pigtail braids to the woman I am today. My mom has been a cheerleader. And a friend. One to look at my work and smile in encouragement and love. I feel safe to create because this was her response.

I learned over time that being a kind person didn’t mean I should allow others to walk all over me. I learned a kind person can still:

  1. have regrets for the way they have done things in the past- do what they can to make up for mistakes and then move forward with hope, brightly and unapologetically
  2. be in a bad mood and not hide it- I try to be honest and up front especially with family and close friends, I understand now that emotions are linked to a message for me, such as:
    • guilt is telling me I have stepped outside my moral values
    • shame is telling me I am the problem, not that I have a problem
    • joy is telling me this is wonderful, keep it up
    • overwhelmed is telling me to step back and take a breath, there is too much going on
    • sadness says I lost something
    • loneliness says I feel rejected or cast out
    • fear says pay attention, there is a threat
    • gratefulness says I have what I need
    • anger says I feel wronged
    • when I recognize and respond to these emotions, the effects contribute to healing, when I ignore them, they expand and fill to the corners of my mind, hindering a growth mindset
  3. be selective about who they spend their time with- some people drain energy, one can only give so much before reserves are drained
    • “Not everyone is gonna think I’m funny and pretty and that’s ok, they’re wrong though.”
  4. stick up for themselves- including sharing their thoughts with the right people in the right setting to advocate for self, this can be done gently
  5. set boundaries- setting and changing boundaries is exhausting but it is worth it to make sure the minutes of your day and the units of your energy go to the best outlet
    • “I’m training my boundaries to be stronger than my empathy, I’m tired.”
  6. say no!- saying no will often be in your best interest, be prepared for those that ask more than you can give by having the words prepared ahead of time, ‘I am not in a position to help with that” Here are some ways your body says no, hopefully you are listening
    • clenching your jaw
    • hunching, making yourself look small
    • fingers curling in to make fists
    • heart rate increase
    • constantly feeling fatigue
    • tight body and breath
    • knot in the stomach
    • lump in the throat
    • feeling frozen, incapable of moving
    • hard time sharing what is happening
    • irritability is a first sign that your nervous system is dysregulated (eat something with protein or fat to stabilize your blood sugar, then take a brisk walk to move back into a regulated state)
  7. make mistakes or say the wrong thing- you are allowed to be human, don’t hold it against yourself, just admit the mistake, correct any wrongs and move forward
  8. regret choices they have made in the past- “to be old and wise you must first be young and stupid.”

I am still learning to prioritize myself. And not to feel guilty when I need rest. To block out the world and think about what my body needs to feel better right now. Often I need to step away from something I enjoy. And then I can rejoin when I am ready. Instead of pushing past the point of exhaustion and paying for it for days. Always training my brain to see the positives.

Love and Laughter: The Prescription with an Expiration Date

Health does not always come from medicine. Most of the time it comes from peace of mind, peace in the heart, peace in the soul. It comes from laughter and love.

–@powerofpositivity

I would add to that, these aids will not cure a chronic illness but they will heal parts of you. And this will affect the way you interpret pain. The goal is to turn down the dial on the pain.

Pain can be agonizing and constant. In such cases peace is a distant dream. Out of reach. Perhaps for a time. Hold fast. And do not let go.

To those in the thick of pain, I see you. Here is your shout out. To those who are battling unseen and misunderstood illnesses, you are not alone. I see your efforts. To ride that thinnest of all lines. Between wanting to engage in life and overdoing it. I propose there is no way to do this perfectly. But there is a way that will work perfectly for you. You should go do that. Do all the things that are best for you! And remember:

You can only come to the morning through the shadows.

J.R.R. Tolkien

Nature’s Path to Problem-Solving

solvitur ambulando (latin)

“it is solved by walking”

One of my greatest joys this summer has been walking in the forests. Doing so has brought a peace to my life and my nerves that I didn’t know how much I needed. Forest walks are available by going to my How To Get in Touch page. Let me know your availability and I will put something together.

In summary, your best is 100%.. You have something to offer. Silent powers are working for your good. You are amazing. I am not unique but I think I have something to offer. We all have needs. Until they are met, we can get stuck. Keep learning and taking in information. You are not forgotten. With chronic illness and pain. It often seems we live in a different world. But we have the ability to rise from survival to stellify. Directly as a result of what we have survived. And how it has authored our brilliance.

May your daily multivitamin, your pelvic floor, your intuition and your self-appreciation be strong.

Might I suggest that we go outside and chase down a bit of joy?

@wonderled.life

The company on my last walk was as outstanding as the wildflowers. Thanks for joining me!

Hypermobility and Its Impact on Mental Health

WOODNOTE- a natural, musical sound, like birdsong in a forest

In My Hypermobility Era

I will get back to my summer adventures in the forest next week. The last few weeks have been tough. So today I am sharing more about the battle I am facing with my joints. I try not to speak about it in negative terms as a general rule. But today.

Er. Ma. Gersh!

I have started seeing my physiotherapist on a monthly basis. Which is more often than I see some of my kids. And they live with me! I have felt so close to getting on top of the subluxations. For so long!

And yet, the battle continues. When the joint slips farther than it should, it often gets stuck. This has a compounding effect. Because the joint that was injured primarily will no longer function correctly. This results in adjacent muscles having to pick up the slack. They will start to be overused. In EDS patients, especially, this is unfortunate. Because overuse of any body part, can result in more joints experiencing a subluxation.

I’m a Zebra; The Ehlers Danlos Phenomenon

While I have not been officially diagnosed with Ehlers-Danlos Syndrome. My hypermobility condition is very similar and I have many of the same symptoms. According to Dr. Alan Spanos,” If a patient thinks they have EDS, they are usually right.” Diagnosis parameters have changed a few times. Maybe I will have EDS when it changes next.

Pickles are Great; Until You’re in One

The last time I had an adjustment, my physio and I were working from a different angle. Instead of treating all the joints from the bottom, up. Like we have been doing lately. We tried treating what we thought was the primary injury. Caused by pulling a wagon with my 3 year old grandson in it. That bit of a twist, we thought, must be the first and then other joints follow. So we treated my upper back first.

When I left the appointment everything felt good. But over the next two days, I could tell, my body was not settling correctly. I had two trips planned and another appointment did not fit before I had to leave. That means I have been climbing mountains on one trip. And supervising a group of 40-some teenage girls at camp for the other, all with multiple subluxations and resulting pain. This is my life with Hypermobility.

What in the District One of Hunger Games IS THIS?

The diagnosis process for someone with hypermobility or EDS can be terribly frustrating. I would go to my doctor. She would run tests. She sent me to specialists. For years, every test came back normal. This should be a good thing. But when you feel something is wrong and you are being told, “All is well!”, depression and other mental illness creep in. The years of being left untreated and without hope, caused further problems.

Doctors started to talk more about treating my mental conditions and the physical symptoms were ignored. I started to think this was all in my head. If I just ignore it, I should be able to live a normal life. I minimized my pain to appear normal. I didn’t want to be a complainer anymore. I got really good at acting. But the pain remained and was causing more and more problems.

Your brain wasn’t made for this much noise. Grow a garden, touch some dirt.

-@twopawsfarmhouse

The Not-So-Subtle Art of Burnout

Shortly thereafter, I entered the phase of chronic illness burnout. I lost hope of ever finding healing. I didn’t want to go through the appointments and treatments. I was lost in my pain and grief at the life I was losing. And to make matters worse, those who were supposed to help me, didn’t believe me. The chronic pain was relentless and I felt too weak to do anything about it.

I started this stage of my life, with the perspective that chronic pain wouldn’t stop me. I wanted to work and play and live. I’d seen multiple stories of people who lost limbs or faced cancer. Against all odds, they went on to run marathons or achieve higher levels of scholastic learning. And yet, here I was with my wobbly joints and I couldn’t run to the living room. I had to adjust my expectations. And my life. To fit what was happening. Not what I hoped would happen.

When you experience continual physical symptoms that impact your ability to function in life. Your mental health is going to be affected, at times. The mentality of, ‘don’t let your chronic pain get to you’ is dangerous. I am learning instead to accept what is and make a game plan from there. Do not shame and blame yourself for having something you cannot control.

Decoding the Language of Symptoms

Craniocervical instability is a constant for me this month. Heralding a near perpetual headache that feels like my head is too heavy for my neck to hold. At other times, it is more of a pressure headache. Caused by an impairment of CFS flow. When I yawn or sneeze I think my head will detach. Other people who suffer in the same way can have brain stem compression. Symptoms include: tachycardia, heat intolerance, fainting, extreme thirst and chronic fatigue.

I often experience pain in the joints where the ribs meet the breastbone. Known as costochondritis. Inflammation builds there when the joints of the vertebrae meeting the spine have a subluxation. This feels like tightness in my chest. When I sit upright, the pain is excruciating. And certain movements can jar that vertebrae and cause pain, making it harder to act normal. I can’t sleep on my side. And my running has been put on hold. I have to walk instead😠 .

I have ongoing disc problems. Discs are supposed to help cushion and support the spine. In EDSers these discs are more rigid than usual. When these discs are damaged, pain will radiate down the legs and into the arms. In the past I have suffered from leaking or ruptured discs leading to pinched nerves. At this stage I am grateful to have built up enough muscles to protect those damaged spots.

There are 360 joints in the human body. How many do you have out today? I can count over 20 spots. Dislocations must be terribly painful. I have never experienced one. But I know subluxations. And they are agonizing.

Eye-Opening Symptoms You Can’t Ignore!

Pain makes sleep hard to smoke out. Add to that the fact, as an EDS or hypermobile patient you also make extra adrenaline. Bully for you! This overstimulating effect makes sleep even more arduous. The body continues to make extra adrenaline overnight leaving a body unrefreshed after a shallow sleep. This added endowment of adrenaline also brings with it, anxiety, abnormal nervousness and panic attacks.

After all this, it can be hard not to feel bitter when you see others out and accomplishing. Especially when it is something you would have liked to accomplish, but now you are not able.

And more especially when people say, you can do it anyway! No. I can’t.

I used to play the piano. I enjoyed practicing big, loud songs that used all my fingers and arm strength. I could make the floors of the house shake. I no longer play at all. Any use of my fingers results in pain in my hands, then arms, then shoulders, then back. I have not been able to get on top of this pain. It breaks my heart when I hear someone play the songs I used to play.

The lonliest moment in someone’s life is when they are watching their whole world fall apart, and all they can do is stare blankly.

-F Scott Fitzgerald

Writing is painful and often illegible due to loose finger and hand joints. After years of pain, my hands tremble and shake.

Here is where I make my justification for my crooked teeth. Dental and oral issues are common in EDSers. Teeth are prone to fracture from minor traumas. Gum fragility has led to bleeding gums. In recent years I have struggled with the joint of the jaw. Chewing too much or taking too big of a bite has led to subluxations. EDS also affects speech and swallowing muscles.

The brain fog is so real, I can’t even. I will forget things, feel confusion, have trouble processing information. There are times when it is worse. But there are no times when it is better. I feel like an inside out version of myself. I can still remember who I was, but I can’t seem to bring her back.

Heed the Symptoms or Suffer the Consequences

A crucial reminder here that doing your best does not mean pushing past all your limits. Ignoring your body’s signals. And using every minute of every day to be productive. Doing your best is what you can do within the boundaries of what your body needs from you. Listening to its signals. Without harming your mental and physical health. Not what you can accomplish when you disregard it.

Most days, I pattern my life around my symptoms. I often experience debilitating fatigue. Especially when I forget the pattern. It takes days, not hours, to catch up. I want to approach each day mindful of the energy I have and where I will need it most. I also have to walk the tight rope of sleep and exercise. Laying down and using functional movement. Too much or too little of these will throw me into a surging mudslide. That I do not see coming. And once it starts, there is no option but to ride it out.

I hoped to age like fine wine but it appears that with EDS I will relate more to an aged avocado.

Muscle spasms that make me twitch and pop are a common symptom these days. Probably due to overuse of muscles all day long. I lie down and it can look like I have popcorn popping in my torso.

I finally found my rhythm when I realized even the steps backward were part of the dance.

-unknown

All This is a Fine How-Do-You-Do; Now What?

With all this going on. I am here to tell you today and everyday, there is beauty in this life. Life is worth living. For the joy, and the pain. When you believe this and start to treat yourself as a whole. Your life will be forever changed. Mine was.

I don't ever crave extraordinary moments anymore.
Just small, gentle hums of beauty streaming from below, above and beyond simply from paying attention.
Sound. Light. Shadow. Art. Warmth. The night. The morning.
Dreams that are not far away but exist right here-
Already in my days, hands, and heart.
-Victoria Erikson, Rhythms and Roads

Holistic Patient Care Approach

Holistic health focuses on mind, body and spirit as one unit. Recognizing the cycles. Honouring womanhood. Instead of silencing symptoms, we seek to understand the root cause. And then offer natural, supportive remedies. Like herbs, nutrition, energy work, and somatic practices. Empowering women to trust their intuition, tune into the body, and reclaim health in a way that’s aligned and sustainable. It is a collaboration with the body’s natural intelligence.

Oubaitori

The idea that people, like flowers, bloom in their own time and in their own way

Have you heard of the blue mind theory? “It is the science that shows that being in, near or on the water allows you to fall into a meditative state. Increasing happiness. Lowering cortisol levels. And promoting inner peace for your overall well-being.” teaandtranquil.com

img_5952

Seemingly Trivial Exercises; Substantial Results

Mindfully Natural Ways to Cope

  • Mindful listening- try to discern what the birds are saying
  • Mindful awareness- balance stones on one another
  • Mindful observation- forage local plants
  • Mindful immersion- forest art
  • Mindful appreciation- go on a wonder filled walk
  • Mindful service- tend to your garden of kindness

Healing Meditations

  • Visualization- forming a mental image, guided or self
  • Walking- find a gentle, flowing pace
  • Mindfulness- focusing on awareness
  • Mantra- repeating positive words of affirmation
  • Sound healing- uses vibrations
  • Progressive relaxation- scanning the body to reduce tension
  • Focused breathing- focusing on the breath to ease stress

Steps To An Empathy Walk

  • Find an example of a struggle in nature
  • Find something that brings up feelings of gratitude in you
  • Find an example of unity in diversity
  • Find an example of support and kindness in nature
  • Find an example of something that is healing for you
  • Share all this with someone who cares

Following are three questions that you can ask yourself every morning to design your day according to your current needs. Reminding you to start with intention instead of output.

  1. How do I want to feel today?
  2. What is one thing that would help me feel content at the end of the day?
  3. What can I release from my to-do list?

I find it more pleasant to start the day with clarity and softness. Making it more likely to move through the day as my highest self.

I love my natural remedies. Foremost among them being forest therapy. For well being. For healing. For finding yourself. There are so many ways and reasons to forest bathe. Join me on a forest walk by contacting me on my How To Get in Touch page.

In failure, may we find dignity. In loss, may we find wisdom. In pain may we find growth. May our souls rise. Ever rise.

-Phil Tucker, The White Song

Keep rising my friends!

How to Be a Better Ally for Chronic Pain Sufferers

I am wedded to wooded wanderlust; a true soulmate in the rough.

-Angie Weilland- Crosby

The Best Supporters and the Worst Naysayers

I love my support people. They are the ones who love me, have been with me along the way. And try to understand my world of chronic pain. They mean the world to me and some days they are the thing that keeps me going. This post is not directed at those loving and supportive people. But if they read this, they will get ideas of how to play defense for us chronic comrades in social situations.

You ask what I’ve been doing all this time; as if surviving wasn’t much of an effort.

-Ginnie Bale

I experienced a less-than-supportive exchange recently. I have discussed it with friends who are chronic comrades. They have experienced multiple similar conversations. Let’s talk about what my role is in someone else’s healing? How do I support? And how does it relate to honey bees? Find out more in this post.

First Things First

Join me on Facebook, Instagram and X. For quotes, reasons to forest bathe, updates and the odd pic of my super cute grandkids. If you know anyone that needs this information to be a better support person. Or, if you know a chronic comrade who needs to read this to know they are not alone. Please share.

When Helping Hurts: The Irony of Good Intentions

As humans we love to be fixers. We hear of a problem and we want to get to work solving things. Whatever we can do to relieve the suffering of another. But what if in our best efforts we are creating more pain? How do we support without making it worse?

Saying nothing sometimes says the most.

-Emily Dickinson

I have a dear friend who just had shoulder surgery. She struggles to get up from a seated position. I saw someone trying to help her stand. But in their best effort, they were pulling on her bad shoulder. She didn’t have the words to say, Stop! in her pain. As they yanked on her, she cried out. It made me think, how often in my best efforts am I creating more strain on my chronic comrades? Thinking I am supporting when really I am doing more damage than good.

Unlicensed and Unqualified: Keep Your Remedies to Yourself

One of the more painful things I have encountered since developing this condition. Is being told what I should do to fix it. As though I haven’t been trying for all these years. It brings up so many emotions for me.

When simple solutions are proposed, I feel they are questioning my motivation to get better. When they go on and on about supplements I’ve tried. Or therapies I know don’t work for me, I feel misunderstood. And alone.

When they ask where I’ve been and why I’m ghosting them. I don’t have the words to explain what being stuck in a flare means.

When they say I hope you feel better soon… 🤦🏼‍♀️

In Sorrow: Silence Speaks Louder Than Advice

One must earn the right to give advice to a chronic comrade. Do not offer unsolicited advice. A close support person that has been with us through the years has earned that right. A new acquaintance has not.

While we chronic comrades appreciate the effort. Whatever you think we should try, we have tried or it is not an option. You are not greater than my condition. You will not have the ability to swoop in and solve it. After years of me trying to do so.

As hard as it is for the average human to understand, sometimes there is no answer. We chronic comrades go through a grieving process to get to this place of acceptance. Do not interrupt that process!

My chronic comrades, how do you handle someone that is trying to help and doing more harm?

Try this idea on for size. What if we tried to see that everyone is here to teach us a lesson? What can I learn from this person’s response to hearing about my condition? is a good question. Is there a way to avoid this person in the future? is also a good question.🤷🏼‍♀️

Some cause happiness wherever they go; some whenever they go.

-Oscar Wilde

Sick of Oversharing: Trying My Best

Excited to announce I have just about had it. I feel like my body has had a check engine light on for months and I just kept driving it. ‘It’ll be fine.’ And now all the dashboard lights are on and some of them have started flashing. Sometimes life just sucks the jelly right out of your donut.

When life is going smoothly I can take terrible advice from someone, scoff, and carry on with my life. When life is opposing my every effort, it is much more difficult to have patience. This often happens in chronic conditions. It is a challenge to be patient with those who don’t understand.

This statement rings so true for me. And I hope all my chronic comrades can take this in. Say it with me: My Chronic Illness Is Not My Fault. Now say it again and mean it.

Chronic comrades do not need sympathy or pity. We don’t have time or energy for that. But when my condition and its associated symptoms are treated like moral failings. It drains what life energy we had left. So much of my energy goes to existing, I am stretched. I have a low tolerance for everything.

Here’s an odd question for my chronic comrades. When you meet someone new, how long do you wait to share about your condition? It’s like dating someone new and waiting to tell them you have kids. It’s gonna come up.

I have tried not to share about my condition. I have tried sharing just a snippet. But when someone asks what I do for a living, and I say, “My best, I just keep doing my best.” And they stare blankly at me waiting for the real answer. I eventually say somethings along the lines of, “I have chronic pain and I can’t work right now.” The conversation seems to shift.

My condition permeates my life. It has weaved it’s way throughout and there are not many topics that don’t touch on it. But in giving this much information people seem to think it is now their job to diagnose and cure me. They become Dr Quinn Medicine Woman. And inquire about medical history, medications, past surgeries and the like. They have all the solutions. Often their solution is that I just need some motivation. There is this surgery someone had. Have you tried yoga?

I look deep in their eyes and determine, I’m starting to think we aren’t in this together.

Newsflash

a person’s medical information is not up for your perusal. Do not ask invasive questions and Quit trying to fix them.

Bees Be Like My Chronic Comrades; Let Me Count The Ways

Let’s talk bees. Below, are some bee facts and how they relate to those with chronic conditions.

  1. There are more than 20 000 species of bees including bumblebees and honeybees. There are so many chronic conditions out there we can’t possibly have the answer to every one. Doctors are still working on how to treat them. Let’s allow the doctors and patients to figure that out.
  2. Male bees are called drones. Their only purpose is to mate with the queen bee. We all have a role to play. Those with chronic conditions will have to reassess the role they have assigned themselves at times. Checking in to make sure you are not playing the roles for others around you is key.
  3. Bees live in colonies. Those with chronic conditions rely on their support people. Do not force yourself into a role inside their colony without their approval. It’s like trying to change someone’s pants for them when they already dressed themselves that morning. Soooo awkward!😳
  4. Bees have different odor receptors to help them distinguish different flowers. Generally speaking, those with chronic conditions are able to distinguish the pain and frustration of a chronic comrade. Better than someone who has not experienced it. Do not be offended if your loved one with a chronic illness needs the support of other “bees”.
  5. A Queen Bee can lay up to 2500 eggs a day. You don’t see the queen. Anyone that is able to watch her will think she is just sitting around. But under the surface, great effort is occurring. This is her role and she fills is elegantly. My chronic comrades have been known to lay low. Sometimes that is our role. And I see my chronic comrades as elegant in the laying low and the emerging when it is time.

Here’s another suggestion for my chronic comrades in these awkward conversations, a wise man once said,

Bees don’t waste their time explaining to flies that honey tastes better than 💩.

-Willbur Glenn Colaco

Uplifting Allies: A Glimpse into Positive Support

This is what positive support looks like for me 👇🏼. How about you? Drop an image or remarks in the comments.

If I fall and you don’t know how to safely get me off the floor. Don’t yank and pull until I am crying out in pain, lie down with me until the ambulance arrives.

These are just ideas. These make my nervous system calm to know that someone else has felt what I am feeling. If you can find ways to relate to me, I feel less alone. I feel that when I think of my chronic comrades. I know I have chronic sisters who spend a lot of their time working on their eluxorama. I am inspired by them!

Eluxorama

The devotion to positive spiritual growth in the midst of underlying chaos or darkness

Surviving Life’s Ricochets: Finding Clarity Alfresco

Some days I enjoy time spent developing my eluxorama. Other days I say, ‘it is what it is’, then I turn around and vomit due to anxiety. Having a support person can take me from yelling, “Silence you uneducated peanut!” at those who don’t understand, to :

"Let me keep my distance always, 
from those who think they have the answers.

Let me keep company always with those who say
"Look" and laugh in astonishment
And bow their heads."

-Mary Oliver

Nature’s Finest Wonders

Get out and enjoy some forest therapy. There is so much beauty around us.

In nature nothing is perfect and everything is perfect.

-Alice Walker

Here’s some life lessons from our honey bee friend:

Photo by Lisa from Pexels on Pexels.com
  • stop to smell the roses
  • take care of your family
  • be loyal
  • work hard in your role
  • the sweetest things result from our efforts
  • cooperate and collaborate
  • watch out for nature
  • consider the needs of the group

Thanks for joining me. Whether you are a sufferer or a supporter or someone that wants to understand. Here’s the highlights. Make sure your helping is helpful and not harmful. Unless you specialize in my condition, or are a support person that has earned the right to an opinion. Kindly keep your remedies to yourself. Even if you have the best of intentions. Thank you, but no thank you. My condition is not my fault and yes, I have tried that. Do you see yourself in my bee analysezzzzz? I’ve shared what positive support looks like for me. Drop a comment for what brings your nervous system to calm. Develop your eluxorama and enjoy nature’s wonders. Take some lessons from our bee friends. Take care, my friends.

"Some days she's a warrior.
Some days she's a broken mess.
Most days she's a bit of both.
But everyday she's there
Standing. Fighting. Trying."
-Anonymous

…as I wandered the forest, the green leaves among, i heard a wildflower singing a song…

-William Blake

Photo by Kristina Paukshtite on Pexels.com